Pictures & Things

Imagine posting a picture of your child and having the world tell you “That’s private. You shouldn’t be sharing that!”

Imagine giving birth to a child and having the world tell you “Ew, no one wants to see that!”

Imagine grieving the loss of a loved one and the world telling you “You don’t need to talk about it so much. This isn’t newsworthy.”

Imagine being so open and honest and raw all the time, but when it’s about something real, something matters, the world tells you to “Shut up and stay in your lane.”

Imagine knowing the pictures you take in that moment are the only ones you will ever take in your entire lifetime and the world telling you “That’s morbid, I don’t want to see that.”

For some of us, we don’t get a lifetime of memories. We get pictures and things from a moment, that must last us a lifetime. When Stella & Joy were stillborn, I was one of the lucky ones. Yes, I said lucky. I was able to spend 3 days in the hospital with them. I had family and friends who came to visit and spent hours with us, holding my daughters, trying to make a lifetime of memories in a matter of days. Not everyone gets that. Not everyone gets time. Now, with Coronavirus, not everyone gets visitors either. Imagine being the only one who can meet and hold your child, EVER. Knowing the only way they will be remembered is through the pictures you take and the things you save.

The only way I can ever share or introduce my daughters is through pictures and things. Fortunately I have many pictures, but there are so many I don’t have and will never have. I don’t have pictures of them each month so I can compare how much they’ve grown. I don’t have pictures of if they have brown eyes like me or blue like Zach. I don’t have pictures of their first step or first birthday. I will never have pictures of their first day of school or their first time on the bus. I will never have pictures of their first school dance. I will never have pictures of their graduation. I will never have pictures of their weddings. I will never have pictures of them with their own children.

The pictures and things I do have are precious. I at least have some pictures. I have the blankets they were wrapped and held in while we had them with us. I have the two outfits they wore. I have their ashes in tiny little urns. But that’s it. A few pictures and things. Not a lifetime of memories, but a lifetime of wondering what could have been.

So before you judge a person on how they grieve, what they post, what they share, think about the fact that that may be all they have. Pictures of things. Before you speak ill of a person experiencing the greatest tragedy of their lives, imagine yourself in their shoes, and when you can’t image it, be thankful that you have no idea what it’s like.

1 in 4. 1 in 4 pregnancies end in loss. 1 in 4 pregnancies have no happy ending. You know someone who has been there. You probably know more than one. And they are paying attention to how you speak and react when others go through loss. They remember. They know who the “safe people” are to talk to, and who just won’t understand or even try

So if you are a “sharer,” share on! Take and post the pictures! Tell the stories! Let us in on all the craziness that is your life! I for one am here to listen!

If you are a private person, do you! Take the picture and share with who you want! Don’t tell us anything! Live your life in peace! I support your choice!

But no matter what kind of person you are, be kind. I can’t say it enough. Be kind to one another. Be gentle. Be aware. You don’t know who’s been through what. So be kind, be gentle, be aware. Spread love and take care of each other.

Love always to my beautiful baby girls, Stella & Joy 💕

3rd Annual Book Drive

The time has come to begin collecting books again. In the last two years, we have donated around 1,500 books to families in needs. While researching facts to share, I came across The National Children’s Book and Literacy Alliance web page and the article I’ve copied below.

Why Do Kids Need Books

Books create warm emotional bonds between adults and kids when they read books together.

Books help kids develop basic language skills and profoundly expand their vocabularies—much more than any other media.

Books are interactive; they demand that kids think. Fiction and nonfiction books widen our consciousness. They give us new ways to think and new ideas. They expand our universe beyond time and place and inspire our own original thoughts.

Books develop critical thinking skills. A book is read by an individual. It has no laugh track or musical score that emotionally primes a reader’s reaction. You alone decide what you think about a book and its contents with no one leaning over your shoulder telling you how to think.

Books develop and nourish kids’ imaginations, expanding their worlds. Picture books introduce young children to the world of art and literature. Novels and nonfiction books stimulate kids’ sensory awareness, helping kids to see, hear, taste, feel, and smell on an imagined level. Books inform our imaginations, inspiring creativity.

Books let kids try on the world before they have to go out into it. Books give kids an opportunity to experience something in their imaginations before it happens to them in real life. Books help prepare kids for their next stage of maturity, vicariously preparing for the “grown-up” world.

Books help us to understand ourselves, to find out who we are. Books strengthen our self-confidence and help us to understand why we are who we are. They help us discover where we come from and help us figure out where we want to go.

(You can read this article in its entirety at The National Children’s Book and Literacy Alliance.)

This year, there are several ways you can help us.

  1. The obvious, donate books! New is preferred, but we also welcome gently used
  2. Visit our Amazon Wish List and have books sent directly to us.
  3. Cash or Venmo (@Michelle-VanBenthem) donations are also appreciated. On Stella & Joy’s actual birthday (December 2nd) Zach, Oliver, and I go to the book store and purchase new books with any monitory donations we receive. It has become a nice tradition and something positive to do on an otherwise challenging day.

Thank you to everyone who has supported this venture the last two years, we hope to continue this tradition for many years to come!

~Michelle

October

October

In October 1988, President Ronald Reagan proclaimed October as National Pregnancy and Infant Loss Awareness Month. “When a child loses his parent, they are called an orphan. When a spouse loses her or his partner, they are called a widower or widow. When parents lose their child there isn’t a word to describe them. This month recognizes the loss so many parents experience across the United States and around the world. It is also meant to inform and provide resources for parents who have lost children due to miscarriage, ectopic pregnancy, molar pregnancy, stillbirths, birth defect, SIDS, and other causes.”

Well, here we are again. October has come. For one month it’s slightly more “acceptable” for me to talk about my daughters and stillbirth. Pregnancy & Infant Loss Awareness Month is about educating others and remembering & honoring all of the babies gone too soon. Miscarriage, stillbirth, and infant loss touches more lives than anyone will ever fully get.

Here are some stats for you:

  • 1 in 4 women will lose a baby during pregnancy, delivery, or infancy
  • 70 babies – a school bus full of children – will be stillborn today
  • 1 in 160 pregnancies will end in stillbirth
  • 50% of the time, a cause is unknown
  • Kick counts aren’t as important as recognizing kick patterns
  • The United States loses more babies annually than 28 other nations
  • Approximately 2,500 babies die of SIDS every year

I knew nothing when I first got pregnant with Stella and Joy. I knew what miscarriage was and knew people who had one, but I thought after 13 weeks I was safe. I didn’t know about “kick counts”. I didn’t know about patterns and changes and what to look for. I didn’t know. Now I do. Please remember our children who were taken well before their time. Speak their names, light a candle on the 15th, wear pink and blue. Anything you do to show your love and support is noticed and appreciated beyond words.

To The Nurses Just Playing Cards,

To The Nurses Just Playing Cards,

I call your bluff. You see, I saw the glaze on your eyes when the doctor told me my daughters were gone. You really should have a better poker face.

I watched you fold. Turning and hurrying out of the room so I wouldn’t see you cry.

I saw you flop as you had to explain to the next nurse what had happened, what went wrong, and how to care for us as your shift changed.

I thanked for you breaking the rules and allowing a full house in our room so our friends and family could have their time with the our girls.

I read your hand. Your hand that held mine as I waited in triage to have another C-section, this time hoping the baby would be alive.

I saw you shuffle your schedule so you could wheel me to the NICU to see my son, giving me more time than I was supposed to have.

I heard you call to the other nurses to hear our story, ask questions, and be comfortable with caring for us and our son, while still honoring our daughters.

I was lucky to have two of kind nurses help me out of bed, clean me, and change me for the first time after surgery, such a glamorous job.

I saw you all handle every card you were dealt with class and pride. I have a higher level of respect for you than most doctors I’ve encountered. So if you want to play cards for 12 hours, I say go for it. You are the real champions of this game.

A Letter to My Daughters

A Letter to My Daughters

To My Darling Daughters, Stella & Joy,

As your brother’s 1st birthday approaches, I am forced once again to reflect on what I have missed, what I was robbed of. I was robbed of watching you grow and change and develop during your first year of life. I was robbed of taking monthly pictures, forcing you into matching outfits with stickers on your bellies. I was robbed of deciding on a theme and having your dad create invitations for your 1st birthday party. I was robbed of being able to celebrate the first year of what should have been amazing lives.

Every milestone I experience with your brother, I also think of you. I think of opportunities lost and moments taken. I wonder when you would have hit those same milestones. Would it have happened at the same time? Would you have crawled the same way? This should be the third time I am watching a child, my child, hit these milestones. This should be the third first birthday I get to celebrate and plan. I am so sorry we never got these moments together.

I know my life seems consumed with your brother. My social media accounts and phone and conversations are overflowing with pictures and videos and stories of what your brother has done or is doing. Please know that I haven’t forgotten you. I will never forget you. You will always be my first and second children. My daughters. The ones who made me a mother. My love for you is never-ending.

As we prepare to celebrate, I still mourn and miss you. I always will. But, I know you will be there. Your Stella-bear and Joy-bear will be sitting in their rocker as they do every day and night. Your shadow boxes are displayed prominently, right next to your brother’s, on the living room wall. Oliver may have brought us light and happiness in a time of darkness and despair, but he has not and never will replace the two of you.

Thank you for being my firsts. Thank you for making me a mom. Thank you for showing me the depths that a person’s love can reach. I wish so much that I could have seen you reach your milestones. I wish I could have celebrated your 1st birthdays and all the birthdays after that. I wish I could have watched you grow into the amazing, beautiful young women I know you would have been.

I will always love, I will forever miss you, I will never forget you.

With more love than you can ever know,

Mom

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Pictures

Pictures

Today at work, 7th & 8th graders listed to a presentation called Ryan’s Story. Ryan committed suicide when he was in 7th grade. Ryan’s dad, John Halligan, told his story to the students and staff. It was raw, emotional, and moving. When he opened his speech, Mr. Halligan said there is no greater pain than the loss of a child. He said he hoped no adult in the room knew that pain. I looked at the floor and sunk into my seat, hoping no one would look at me with their pity eyes, and if they did, I didn’t want to see it.

Other than that moment, I “enjoyed” his presentation. Mr. Halligan is a fantastic speaker. He speaks of son with such pride and emotion. He speech comes off with a poetic feel. His word are honest and true. It is a harsh reality for some of these kids, bullying does have consequences. The words they use, both in person and via a screen, have lasting effects.

Some of the kids get emotional during the speech. Mr. Halligan hold no punches. He tells the kids exactly how he felt. How he wanted to drive to the bully’s house and “beat the heck out of him.” How his daughter was the one who found Ryan and hasn’t been the same since. How when students bully others, they are also bullying someone family.

Two students were sitting in the back row. One was visibly upset so I left to take him to a teacher and classroom he felt safe in. When I got back I sat with the other student who later asked if he too could leave. I walked him to the same room and returned to the auditorium for the rest of the presentation. I knew it was almost over so I stood in the back and waited. As I stood there I watched the picture slideshow playing behind Mr. Halligan.

The slideshow had been playing through his entire speech, but I was so focused on his words and making sure these student were okay that it never hit me. The only way he will ever see his son again is through those pictures. It hit me like a ton of bricks. I had to walk away. I had to remove myself from the situation. So I went in the faculty room, allowed myself to cry, and pulled it back together enough to return my classroom at the end of the day.

I don’t know the pain of losing a child to suicide, but I do know the pain of losing a child. I can empathize with the constant need to fill that hole in your heart. The constant need to remember your child and make sure others remember too.

These are the moments I don’t prepare for. I can’t prepare for. The “club” of loss parents of made up of different stories and different situations, but the cost of membership is the same. Like Mr. Halligan, I will only see Stella & Joy again in pictures and in my dreams. Our paths in life our so different, but our grief is so similar. The grief of a parent mourning their child, no matter how many years have gone by, is never ending. It changes and comes at different times and in different ways, but the pain is still there. Just as Mr. Halligan give his speech with pictures of his son behind him, I will now go to bed with pictures of my daughters across from me. Because pictures are all I have.

For more information about Ryan and John Halligan, please visit their site, ryanpatrickhalligan.org

Missing My Girls

This week is and always will be the hardest week of my life. November 28th marks the beginning of the end. Two years ago, November 28th was on a Monday. It was the first day back at work after Thanksgiving break and the beginning of what was supposed to be my last week of work before Stella and Joy were born. I woke up, worked a normal day, and went home. Zach was home and came with me to my NST that night, something he didn’t normally do. Usually, it was a boring 20-30 minutes where I just sat in a hospital bed with the monitors on my belly and listened the girls’ heartbeats.

On that Monday, the nurse noticed my blood pressure was pretty high, higher than normal. She decided to call the on call doctor who then ordered a preeclampsia panel. One urine sample and several vials of blood later, we now sat and waited for the results. While we were waiting the monitors stayed on and we could hear the soft thuds of Stella & Joy’s hearts in the background. The nurse came in and told me my panel came back borderline, but wasn’t enough to admit me and consider it preeclampsia yet. I was told to go home, put my feet up, and not return to work anymore. I had an ob appointment the next day so they said to just rest and relax as much as possible until my appointment and hopefully my blood pressure would go down.

Looking back now, after having a successful pregnancy at a different practice I realize how naive and uneducated I was. With Oliver, I had a clicker to record movements during my NSTs. I was taught what to look for and what to pay attention to. I was told that hiccups don’t count as kicks or movement because they are involuntary. With Stella and Joy, I didn’t even know what kick counts were. I was always asked if I had felt them move, but I didn’t know about actually sitting and tracking and monitoring their movements. I didn’t know that I should be looking for certain patterns in their movements. If I only I knew then what I know now.

On Tuesday, November 29, Zach and I went to our regular ob appointment as scheduled. The doctor noticed my blood pressure was still pretty high as was my swelling, even after a full day of rest and doing nothing, so she sent us back to the hospital for another round of NSTs. She had called ahead so they were ready for us when we got there. I already knew the routine so I changed into my gown, got in the bed, and waited for them to hook up the monitors. Something felt off from the beginning. My normal nurses weren’t there and the doctor I liked the least in the practice was there. Still, Zach and I were excited and waited. His car was fully packed, we were as prepared as we were ever going to be and we knew, at any moment they could say it was time and deliver the babies.

They took my blood pressure and it was still high, or at least I assume so. The nurse kept turning the monitor away from me, saying seeing the numbers would only make it higher. The girls weren’t really cooperating that day and seemed to pop on and off the monitor. To doctor came in, looks over the NST strip and checked my blood pressure one more time. He seemed so aloof. He didn’t seem to think anything was too bad. The nurse seemed to point a few things out, but he seemed to blow her off. He never did an ultrasound. He sent me home and told me to continue to rest. I was supposed to have another NST that Thursday, December 1st, but he told me to just wait and come back on Friday instead.

Looking back, this is my biggest regret. I should have never left. As much as I regret it and feel guilty, I feel even more anger. Knowing what I know now, I would have been such a better advocate for myself and my daughters. I would have made them run a second preeclampsia panel. I would has requested an ultrasound and biophysical profile. I would have spoken up and asked the nurse what she was pointing out. Why did she feel the need to point it out? Obviously it was something, but the doctor blew it off. I was only 8 days away from my scheduled c-section, I should have just made them keep me. But I didn’t. I didn’t do anything of things. I didn’t act because I didn’t know.

For the rest of the week, I sat on the couch and did as little as possible. I was really having trouble walking and moving at that point and I knew Zach had to work on Friday so I asked my mom if she would take to the hospital for my NST. The hospital has a pretty large hill from the parking lot to the entrance so I needed someone to drop me off at the door. This was the first week that I had someone with me at every appointment. Usually I went to the NSTs by myself, especially if Zach was working. They were kind of boring and it was close to my house so it really wasn’t a big deal. I will never go to an appointment by myself again. Even now, after having a healthy baby, I still know what could happen and can’t imagine being there alone.

Friday, December 2nd I went in for the NST with my mom. I forewarned her that it was boring and just a lot of sitting around. My regular nurses were there this time so I was very relaxed. I sat on the bed as the nurse started hooking up the monitors. She put the first monitor on, to watch for contractions. As she was putting gel on the second probe and getting ready to put it on Stella I joked with my mom, saying that this was where the girls would play hide and seek and we had to hunt a little bit to find the heartbeats. Usually, as soon as she put the monitor on you could hear the heartbeat faintly in the background, then she would search for the perfect placement right over the heart. This time was different. This time there was no faint sound. There was no sound at all. There was nothing but silence and stillness. The nurses face said it all. She tried moving the probe around a few more times but still there was silence.

The nurse rushed to get a doctor to bring in an ultrasound machine. I wanted to stay positive, but I already knew. She was gone. My precious Stella was gone. As they took off the NST probes and started the ultrasound, I saw it. I saw the emptiness. I saw the blank, black spot where her heart should have been flickering and fluttering away. She was gone. As they switched sides to check on Joy, I already knew, she was gone too. Once again, I saw the empty, black spot in her chest, noticeably absent of that glorious flicker. Both of them. Both of my daughter were gone, just like that. Without warning or signs or symptoms or anything, they were just gone.

My world shattered. My dreams collapsed. Everything I knew, and loved, and dreamed and hoped for was gone. I felt as empty as those black spots on the ultrasound machine. I screamed, I cried, I begged. I just wanted to understand, but it was too late. The worst still wasn’t over though, Zach was still in Connecticut. I had to call him and tell what happened. I knew that with one phone call, I was going to ruin his world and his life too. The rest of that night is very much a blur. There are parts I remember, and parts I try to block out.

December 2nd my beautiful daughters were born sleeping. They entered this world silently, yet they left such a huge impact. My life has forever been changed by them. They made me a mother. They showed me just how deep unconditional love can go. They taught me just how strong I could be when I had no other choice. Stella Grace and Joy Joan May have been stillborn, but they were still born. I will miss them forever and treasure them always.

2nd Annual Book Drive

November 2nd. We are only one month away from Stella & Joy’s 2nd angelversary. Two years. Twenty-four months. 730 days. 17,520 minutes. An infinite number of tears and heart ache for what never came to be. Nothing will ever make the pain go away. Nothing will ever bring my daughters back. So I must find a way to keep their memory alive.

Once again, Zach and I are choosing to do some good in memory of Stella & Joy. Last year, you helped us donate over 800 books to low income daycares and families in Montgomery County. The response we received when I dropped off the books was amazing. Here’s some hard facts for you:

-Children who are not reading at grade level by the end of third grade are four times more likely to drop out of high school; six times as likely when they are also born into poverty

-By age 3, there is a 30 million word gap between children from the wealthiest and poorest families

-1 in 4 children in America grow up without learning how to read

-75% of Americans who receive food stamps perform at the lowest 2 levels of literacy, and 90% of high school dropouts are on welfare

When parents from low income families go holiday shopping, they must choose between basic life necessities and books or toys. In reality, there is not choice. Clothes, socks, food, heat, all take priority. When I dropped off the books last year, one of the things I was told was that some of these kids had never even read a brand new book, let alone owned one.

It goes without saying that given the choice, Stella & Joy would be here in my arms. But since they can’t be, I will keep their memory alive by helping others. Once again, every book we donate will have a sticker inside reading “Donated in Loving Memory of Stella & Joy Van Benthem.” Nothing makes me happier than seeing and hearing my daughters names.

So when you are shopping this holiday season, please consider picking up a book or two and sending them our way. If you are cleaning out you kid’s rooms or bookshelves, consider passing on the gently used books they no longer read. Please, help us keep Stella & Joy’s memory alive and give the gift of literacy to children who may otherwise never have the chance.

*If you need our address to mail us books, please let me know. Thank you!

The End of October

The End of October

Wednesday, October 31, will be a bittersweet day. I’ll get to enjoy Oliver’s first Halloween. Dressing him up in his skunk costume, lil stinker, and taking lots of pictures to remember the moment for years to come. It will also be the last of of Pregnancy and Infant Loss Awareness Month. The pink and blue will go away. The conversations and awareness will dissipate. The world will go on.

For the entire month I have worn my pink and blue bracelet, made by the Cooper Project. Even as the month comes to an end, I find I’m not ready to take it off. I’m not ready to let go of this month. I’m not ready to look down at my watch and not see the pink and blue string next to it anymore. Even if others don’t know what it means, every time I see it I picture my girls. I see Stella in her coral fleece onesie laying in my arms. I see Joy in her blue fleece onesie being so carefully held by Zach. For that brief second, I see them.

I remember my girls everyday. I have their names forever written on my arm. I wear their names around my neck. I have their pictures on my phone, throughout our house, and even hidden a few places in my classroom. I never forget. I will never forget. I know that on the first of the month when I write my initial post and on the 15th when I ask you all to light a candle and participate in the wave of light, most of you think about my girls. But I also know that most you continue living your lives blissful unaware of what life is like after losing your child. After losing your children. After losing your future and all the plans you made for your family.

There is nothing that can prepare you for hearing those words, “I’m sorry, there is no heartbeat.” There is even less to prepare you for life after hearing those words. My heart was shattered Friday, December 2, 2016. As October ends and we near Stella & Joy’s two year angelversary, please don’t forget them. Remember that as much as Oliver has helped to heal my heart, it is still very much shattered. Please don’t let my daughters’ memory and your awareness stop at the end of October.

October

October

Well, its come again…Pregnancy and Infant Loss Awareness month. Sometimes I wish I wasn’t aware. I wish I was still blissfully ignorant and enjoying watching my daughters grow up. Other times, I wear my experience as a badge of honor. I have been able to be a pillar of support for a friend who went through a recent miscarriage. I was one of the first blogs a friend-of-a-friend read after losing her child. My advice was sought out to help a friend whose family member who just had a stillbirth. I wish I was never in this position, but I am glad I can use what I have been through to help others.

At times, I feel like people think I should be better now that Oliver is here. Like I shouldn’t be sad anymore because he is here and healthy. That’s not how grief works. I will be a grieving mother every minute, of every day, for the rest of my life. Just because I smile, enjoy myself, and have fun doesn’t mean I’m magically better. Just because I post pictures of Oliver and shower him with love and affection doesn’t mean my heart has suddenly healed the two gaping holes that exist where Stella & Joy should be. I will never be fixed. I will never be better. What I will be is an advocate, and a mother who forever fights to keep my daughters’ memory alive.

October, while most often and publicly know as breast cancer awareness month, is also Pregnancy and Infant Loss Awareness month. This month we remember all the babies who were born sleeping. The babies who were carried, but never held. The babies we met, but never really got to know. The babies who came home, but weren’t able to stay.

When a child loses his parent, they are called an orphan. When a spouse loses her or his partner, they are called a widow or widower. When parents lose their child, there isn’t a word to describe them. ~Ronald Reagan

I was naive, uneducated, and unaware of what stillbirth was. I knew about miscarriage. That’s why we waited until we reached 13 weeks to announce that I was pregnant with the twins. We waited for the safe zone. I knew about SIDS. That’s why I made sure the crib and bassinet were free of blankets, toys, and other dangers. I didn’t know about stillbirth. I didn’t know that each year about 24,000 babies are stillborn in the United States alone. I didn’t know that there is more than 10 times as many deaths as the number that occurs from SIDS. I didn’t know about kick counts. That I should be watching and feeling for patterns and not just whether or not I felt the babies move that day.

I know now. I know that you can go 35 weeks and 5 days being pregnant with basically no complications and have it all come crashing down. I now know that you can go in for a routine non-stress test and hear the deafening silence of no heartbeat. I now know that you can look at an ultrasound monitor, knowing exactly where each organ should be because you’ve had so many ultrasounds at that point, and not seeing that glorious flicker where your daughter’s heart should be. I now know that you can lose both babies in a twin pregnancy. I now know that you still have to deliver those babies that you carried for months. I now know that you still have to go through all of the after birth experiences like postpartum bleeding, engorged breasts, and c-section incision pain. I am no longer naive, uneducated, or unaware.

This October, I still encourage you to Go Pink! Raise money, promote research, and support/remember those whose lives have been impacted by breast cancer. I also encourage you to throw in a little blue. Go pink and blue to remember those babies and families whose lives are forever changed. To remember my Stella and my Joy.